tag:blogger.com,1999:blog-91575026493190552232024-03-13T21:41:46.932-07:00Acoustic Neuroma Association San Diego Support GroupHelen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.comBlogger30125tag:blogger.com,1999:blog-9157502649319055223.post-19550648791091063172016-05-31T16:02:00.002-07:002016-05-31T16:02:32.761-07:00BioAid Hearing Aids<div dir="ltr" style="text-align: left;" trbidi="on">
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<a href="http://bioaid.org.uk/" style="color: #0044b3; text-decoration: none;" title="The biologically inspired hearing aid"><img alt="bioaid" src="http://bioaid.org.uk/images/bioaid.png" style="border: none;" width="300" /></a><div class="tagline" style="float: left; font-size: 1.2em; font-weight: bold; left: 20em; position: absolute; top: 0.6em;">
Available now. FREE!<a href="https://itunes.apple.com/gb/app/bioaid/id577764716" style="color: #0044b3; text-decoration: none;"><img src="http://bioaid.org.uk/images/appstore_download_hires.png" style="border: none; height: 50px;" /></a></div>
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<li style="color: #cc0033; font-weight: bold; margin: 0px; padding: 0.3em 0px 0.6em 0em;">Start Here<ol class="toc" style="list-style: none; margin: 0.3em 0px 0px; padding: 0.3em 0px 0.9em 0.9em;">
<li style="margin: 0px; padding: 0.3em 0px 0.3em 0em;"><a href="http://bioaid.org.uk/" style="color: #0044b3; font-weight: normal; text-decoration: none;">Welcome</a></li>
<li style="margin: 0px; padding: 0.3em 0px 0.3em 0em;"><a href="http://bioaid.org.uk/project.html" style="color: #0044b3; font-weight: normal; text-decoration: none;">Project Overview</a></li>
<li style="margin: 0px; padding: 0.3em 0px 0.3em 0em;"><a href="http://bioaid.org.uk/vid.html" style="color: #0044b3; font-weight: normal; text-decoration: none;">Video Media</a></li>
<li style="margin: 0px; padding: 0.3em 0px 0.3em 0em;"><a href="http://bioaid.org.uk/contact.html" style="color: #0044b3; font-weight: normal; text-decoration: none;">People & Contact</a></li>
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<li style="color: #cc0033; font-weight: bold; margin: 0px; padding: 0.3em 0px 0.6em 0em;">BioAid Buzz</li>
<li style="color: #cc0033; font-weight: bold; margin: 0px; padding: 0.3em 0px 0.6em 0em;"><a href="http://bioaid.org.uk/testims.html" style="color: #0044b3; font-weight: normal; text-decoration: none;">Testimonials</a></li>
<li style="color: #cc0033; font-weight: bold; margin: 0px; padding: 0.3em 0px 0.6em 0em;"><a href="http://www.facebook.com/bioaidapp" style="color: #0044b3; font-weight: normal; text-decoration: none;" target="_blank">Facebook</a></li>
<li style="color: #cc0033; font-weight: bold; margin: 0px; padding: 0.3em 0px 0.6em 0em;">Help<ol class="toc" style="list-style: none; margin: 0.3em 0px 0px; padding: 0.3em 0px 0.9em 0.9em;">
<li style="margin: 0px; padding: 0.3em 0px 0.3em 0em;"><a href="http://bioaid.org.uk/inappdocs.html" style="color: #0044b3; font-weight: normal; text-decoration: none;">Quick Start</a></li>
<li style="margin: 0px; padding: 0.3em 0px 0.3em 0em;"><a href="http://bioaid.org.uk/info.html" style="color: #0044b3; font-weight: normal; text-decoration: none;">Basic Usage</a></li>
<li style="margin: 0px; padding: 0.3em 0px 0.3em 0em;"><a href="http://bioaid.org.uk/FAQ.html" style="color: #0044b3; font-weight: normal; text-decoration: none;">FAQ</a></li>
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<li style="color: #cc0033; font-weight: bold; margin: 0px; padding: 0.3em 0px 0.6em 0em;">Tech Zone<ol class="toc" style="list-style: none; margin: 0.3em 0px 0px; padding: 0.3em 0px 0.9em 0.9em;">
<li style="margin: 0px; padding: 0.3em 0px 0.3em 0em;"><a href="http://bioaid.org.uk/algo.html" style="color: #0044b3; font-weight: normal; text-decoration: none;">The Algorithm</a></li>
<li style="margin: 0px; padding: 0.3em 0px 0.3em 0em;"><a href="http://bioaid.org.uk/source.html" style="color: #0044b3; font-weight: normal; text-decoration: none;">Source Code</a></li>
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<li style="color: #cc0033; font-weight: bold; margin: 0px; padding: 0.3em 0px 0.6em 0em;">Project Links<ol class="toc" style="list-style: none; margin: 0.3em 0px 0px; padding: 0.3em 0px 0.9em 0.9em;"><div style="color: black; font-weight: normal; vertical-align: middle;">
<a href="https://itunes.apple.com/gb/app/bioaid/id577764716" style="color: #0044b3; text-decoration: none;"><img src="http://bioaid.org.uk/images/appstore_download.png" style="border: none; width: 120px;" /></a></div>
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<a href="http://www.facebook.com/bioaidapp" style="color: #0044b3; text-decoration: none;" target="_blank"><img src="http://bioaid.org.uk/images/facebook_button.gif" style="border: none; width: 120px;" /></a></div>
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<a href="https://github.com/audioplastic/BioAid" style="color: #0044b3; text-decoration: none;" target="_blank"><img src="http://bioaid.org.uk/images/github.jpeg" style="border: none; width: 120px;" /></a></div>
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The Biologically Inspired Hearing Aid</h1>
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The core of the BioAid project is a <a href="http://bioaid.org.uk/project.html" style="color: #0044b3; text-decoration: none;">novel hearing aid algorithm</a> based on our knowledge of the biological processes that occur in the ear.<br />
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<span class="caps">NEWS</span> <span class="caps">FLASH</span>: August 21st, 2013 – <a href="http://www.aud1.com/" style="color: #0044b3; text-decoration: none;"><span class="caps">NEW</span><span class="caps">APP</span> <span class="caps">RELEASED</span></a></h1>
<a href="http://aud1.com/" style="color: #0044b3; text-decoration: none;"><img alt="Aud1" height="128px" src="http://bioaid.org.uk/images/aud1/Aud1_logo.png" style="border: none;" /></a><br />
Now available on the App Store, <a href="http://www.aud1.com/" style="color: #0044b3; text-decoration: none;">Aud1</a> is a new assistive listening app that implements the features requested by the BioAid user community. These features include, but are not limited to . .<br />
<ul>
<li>Dual algorithm technology, allowing settings for each ear to be adjusted independently.</li>
<li>Advanced connectivity options, allowing use of high quality audio peripherals to improve sound quality.</li>
<li>Stereo linkage technology to preserve spatial cues when the app is used with stereo input hardware.</li>
<li>Fine grain control over the dynamic range of the processed sound.</li>
<li>High optimization for extremely low processing delay.</li>
<li>Automatic storage of preferred settings, even if the device runs out of power.</li>
<li>Adjustable input and output gain controls to fully utilize the dynamic range of the device.</li>
<li>Detection of accidental removal of headphones, preventing annoying feedback in public places.</li>
</ul>
<table style="border-spacing: 0px; margin: 0.3em 0px; width: 704px;"><tbody>
<tr><td style="border-bottom-color: rgb(216, 216, 216); border-bottom-style: solid; border-bottom-width: 1px; padding: 0.3em 0.5em; vertical-align: top;"><img alt="" src="http://bioaid.org.uk/images/aud1/tile_iTunes.png" style="border: none;" /></td><td style="border-bottom-color: rgb(216, 216, 216); border-bottom-style: solid; border-bottom-width: 1px; padding: 0.3em 0.5em; vertical-align: top;"><a href="http://www.aud1.com/" style="color: #0044b3; text-decoration: none;">Aud1</a> pushes the boundaries of assistive listening technology on mobile platforms and it is available for download now. <a href="https://itunes.apple.com/gb/app/aud1/id689041123?mt=8&uo=4" style="background: url("http://linkmaker.itunes.apple.com/htmlResources/assets/en_us//images/web/linkmaker/badge_appstore-lrg.png") no-repeat; color: #0044b3; display: inline-block; height: 40px; overflow: hidden; text-decoration: none; width: 135px;" target="itunes_store"></a></td></tr>
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<tr><td style="border-bottom-color: rgb(216, 216, 216); border-bottom-style: solid; border-bottom-width: 1px; padding: 0.3em 0.5em; vertical-align: top;"><img alt="" src="http://bioaid.org.uk/images/app_ico.png" style="border: none;" /></td><td style="border-bottom-color: rgb(216, 216, 216); border-bottom-style: solid; border-bottom-width: 1px; padding: 0.3em 0.5em; vertical-align: top;">A free implementation of the BioAid algorithm can be downloaded on the <a href="https://itunes.apple.com/gb/app/bioaid/id577764716" style="color: #0044b3; text-decoration: none;">app store</a>. The app turns your iOS device into a hearing aid by processing sound from the microphone, then delivering the processed sound over headphones in real time. Care has been taken to make the user interface to the BioAid app very simple. However, please read the information on this site to get the best possible user experience.</td></tr>
</tbody></table>
The <em>algorithm</em> source code is freely available. This allows others to contribute by creating and evaluating their own implementations of the hearing aid.<br />
Thank you for your interest in the BioAid project.<br />
<table style="border-spacing: 0px; margin: 0.3em 0px; width: 704px;"><tbody>
<tr><td style="border-bottom-color: rgb(216, 216, 216); border-bottom-style: solid; border-bottom-width: 1px; padding: 0.3em 0.5em; vertical-align: top;"><img alt="" src="http://bioaid.org.uk/images/Screenshot_A_web.png" style="border: none;" /></td><td style="border-bottom-color: rgb(216, 216, 216); border-bottom-style: solid; border-bottom-width: 1px; padding: 0.3em 0.5em; vertical-align: top;"><img alt="" src="http://bioaid.org.uk/images/Screenshot_B_web.png" style="border: none;" /></td><td style="border-bottom-color: rgb(216, 216, 216); border-bottom-style: solid; border-bottom-width: 1px; padding: 0.3em 0.5em; vertical-align: top;"><img alt="" src="http://bioaid.org.uk/images/Screenshot_C_web.png" style="border: none;" /></td></tr>
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Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com1tag:blogger.com,1999:blog-9157502649319055223.post-80808412555299630252016-05-30T14:46:00.001-07:002016-05-30T14:46:58.846-07:00The Laryngospasms: Waking Up Is Hard To Do!<div dir="ltr" style="text-align: left;" trbidi="on">
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<span class="mw-headline" id="History">History</span><span class="mw-editsection" style="display: inline-block; font-family: sans-serif; font-size: x-small; line-height: 1em; margin-left: 1em; vertical-align: baseline; white-space: nowrap;"><span class="mw-editsection-bracket" style="color: #555555; margin-right: 0.25em;">[</span><a href="https://en.wikipedia.org/w/index.php?title=The_Laryngospasms&action=edit&section=1" style="background: none; color: #0b0080; text-decoration: none;" title="Edit section: History">edit</a><span class="mw-editsection-bracket" style="color: #555555; margin-left: 0.25em;">]</span></span></h2>
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The group can be traced back to a 1990 Christmas party for students of the Minneapolis School of Anesthesia. A few of the then-students were singing various songs, one of them being <a href="https://en.wikipedia.org/wiki/Neil_Sedaka" style="background: none; color: #0b0080; text-decoration: none;" title="Neil Sedaka">Neil Sedaka</a>'s <i><a class="mw-redirect" href="https://en.wikipedia.org/wiki/Breaking_Up_Is_Hard_To_Do" style="background: none; color: #0b0080; text-decoration: none;" title="Breaking Up Is Hard To Do">Breaking Up Is Hard To Do</a></i>. When a senior student suggested that the song be sung as "Waking Up Is Hard To Do", the group was formed. The group's first performance was for the graduation ceremonies of the 1991 class of the Minneapolis School of Anesthesia. This first performance was witnessed by several officers of the Minnesota Association of Nurse Anesthetists. These officers approached the group and ask them to perform at the <a href="https://en.wikipedia.org/wiki/American_Association_of_Nurse_Anesthetists" style="background: none; color: #0b0080; text-decoration: none;" title="American Association of Nurse Anesthetists">American Association of Nurse Anesthetists</a>' National Conference, to be held in<a href="https://en.wikipedia.org/wiki/Nashville,_Tennessee" style="background: none; color: #0b0080; text-decoration: none;" title="Nashville, Tennessee">Nashville, Tennessee</a>, late in the summer of 1991. This was the group's first national performance.</div>
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Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-59644718131248432772016-05-30T14:30:00.000-07:002016-05-30T14:30:06.297-07:00<div dir="ltr" style="text-align: left;" trbidi="on">
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<b>Seven Reasons to attend our Acoustic Neuroma San Diego Support Group:</b></h2>
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1) <b>Find out you're not crazy</b>:<span style="font-weight: normal;"><span style="font-size: small;"> In many cases, your physician may never have heard of the symptoms you're complaining about. Frequently, the surgery team does little follow-up </span></span><span style="font-size: small; font-weight: normal;">with their patients. You will be passed on to your regular physician, somebody that knows </span><span style="font-size: small; font-weight: normal;">little about AN's. For example, my physician asked me recently about my AN and I told </span><span style="font-weight: normal;"><span style="font-size: small;">him SSD was a huge problem. We were sitting knees to knees in a small examination room and my physician has a huge voice. He asked, "Can you hear me?" I replied that I could and he told me I had nothing to worry about. </span></span></div>
<br />2) <b>Reassure others that you're not crazy</b>: If we don't have facial paralysis, most of us have a silent illness - one that doesn't show or display anything to the outside world. All of our<br />boo-boo's are inside. If you have relatives or friends who are "doubtful" about your suffering, bring them along to a meeting. There you'll find others who....<br /><br /><ul style="text-align: left;">
<li>Say "what?" a million times a day</li>
</ul>
<ul style="text-align: left;">
<li>Are exhausted at 3 o'clock in the afternoon</li>
</ul>
<ul style="text-align: left;">
<li>Complain about balloon head, or wonky head</li>
</ul>
<ul style="text-align: left;">
<li>Walk into door jambs</li>
</ul>
<ul style="text-align: left;">
<li>Stagger around parking lots</li>
</ul>
<ul style="text-align: left;">
<li>Choose restaurants, not on service nor on the food, but on the ACOUSTICS!</li>
</ul>
3) <b>Your caregiver(s) get a chance to talk to each other</b>. They play "second banana" all<br />
the time to you and your illness, but they are critically important. While we all appreciate<br />
them, who have they got to vent to? At meetings, they can converse with an understanding ear.<br />
<br />
4) <b>Information</b> about physicians, treatments, audiologists etc. is often shared.<br />
<br />
5) <b>You can find others in a particular sub-group of people</b>...i.e. young people under<br />
30; people with BAHA implants; people over 70; musicians. We have one small<br />
group who all had surgery around the same time and meet for lunches and compare notes<br />
on their progress.<br />
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6)<b> People share tips </b>about hearing devices; coping in stores, seating in restaurants,<br />
dealing with people who think you're drunk; explaining your illness to children etc.,<br />
etc.<br />
<br />
7) <b>You can help others!</b> Giving away what you've got that's helpful is very therapeutic. If<br />
you want to help with the group, let me know. You can open and fold chairs, hand out<br />
nametags, help with the sign-in sheet. If you have ideas about speakers, or locations for<br />
meetings, or for general improvements, let us know.<br />
<br />
<b>Next Meeting:</b> Saturday, June 11th. 1:00 - 4:00 Mission Valley Library, San Diego.<br />
RSVP: Helen McHargue at Foodsmarts@gmail.com or 760-728-0309<br />
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Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-2960583109817859032016-03-04T12:58:00.002-08:002016-03-04T12:58:46.369-08:00Animation of Acoustic Neuroma Growth<div dir="ltr" style="text-align: left;" trbidi="on">
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Here's an excellent animation of the growth of an acoustic neuroma from the Acoustic Neuroma Association NSW. Their website address is: www.users.tpg.com.au</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj6D6Nf7X72PJgN01I33_cLQPxajXDF2VFuIeQWdOleyE6vS4XHl2VSpVR0qWO52U264mVBvbnXkFpwqwgRyI5qBoj79Dj-tsvfqp3hiILCZUC0EZb6DMuI4GJ747b_WLXwNXjER01qeNiM/s1600/Neuroma_animation.gif" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj6D6Nf7X72PJgN01I33_cLQPxajXDF2VFuIeQWdOleyE6vS4XHl2VSpVR0qWO52U264mVBvbnXkFpwqwgRyI5qBoj79Dj-tsvfqp3hiILCZUC0EZb6DMuI4GJ747b_WLXwNXjER01qeNiM/s1600/Neuroma_animation.gif" /></a></div>
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Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-61051467843978068102016-02-24T14:20:00.002-08:002016-02-24T14:20:27.333-08:00Hearing in Restaurants<div dir="ltr" style="text-align: left;" trbidi="on">
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From KARE11. com/advice for foodies with hearing loss</div>
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MINNEAPOLIS -- With new restaurants opening nearly ever week, the Twin Cities restaurant scene is hot! But for anyone with hearing challenges, choosing a new eatery can be harder than deciding what to eat.</div>
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Local hearing care professional Taiha Wagner joined us on KARE11 News @ 4 with some advice for foodies with hearing loss on how to make the most of their night out. The following is a Q and A with Taiha:</div>
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<span style="box-sizing: border-box; font-weight: 700;">Q: How many people struggle with hearing challenges?</span></div>
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· As of 2015, 48 million people have significant hearing loss and struggle with hearing challenges (according to the CHC).</div>
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· Everything from ear infections to prolonged exposure to loud electronics or music… even everyday noise like traffic can hurt a someone’s hearing.</div>
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· What people may not realize is some hearing loss is completely preventable, but it’s not reversible.</div>
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· That’s why it’s so important to have your hearing checked annually, and if there’s a need, to get the proper care. Unfortunately, many people overlook it or are too embarrassed to seek the help they need.</div>
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· And often times, hearing loss can keep people from enjoying life to the fullest -- many choosing to avoid loud situations, like restaurants. </div>
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<span style="box-sizing: border-box; font-weight: 700;">Q: Are there things that restaurants can do better to help diners with hearing challenges?</span></div>
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· It’s important for them to just be aware that many of their customers likely have hearing challenges.</div>
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· Restaurants can offer printed lists of daily specials so that no one misses out.</div>
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· And restaurants that are accommodating to the needs of their diners will likely have repeat customers. It can be as simple as letting a server know who they should stand next to when talking to the table. </div>
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<span style="box-sizing: border-box; font-weight: 700;">Q: So what can people who have hearing loss do to still enjoy a night out at a crowded restaurant?</span></div>
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A: Read Online Reviews</div>
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· Many restaurant rating systems now include noise level as one of the criteria.</div>
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· For example, <a href="http://www.blogher.com/frame.php?url=https%3A%2F%2Fwww.zagat.com%2F&_back=http%3A%2F%2Fwww.blogher.com%2Fhow-choose-restaurant-when-you-have-hearing-loss" style="box-sizing: border-box; color: #1990e5; text-decoration: none;">Zagat</a> now has a "Good for Quiet Conversation" search category. Others likely do as well.</div>
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A: Look for Sound Absorbing Decor</div>
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· When you’re doing you research online, be sure to check out the photos in addition to the menu.</div>
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· Look for restaurants that have carpet, drapes, broken walls instead of walls of windows and booths. All of these things help to dampen the sounds of a busy restaurant.</div>
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A: Be Choosy About Your Seat</div>
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· Once you find a restaurant that you want to try, call ahead to ask for a corner table or a table near a wall.</div>
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· Walls eliminate distractions and help buffer some of the noise.</div>
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· A booth is also often a good choice if it has high back seats.</div>
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· If you’re dining with a group, arrive early so that you can pick the best seat at the table, based on your hearing needs.</div>
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A: Let Technology Help</div>
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· Hearing aids have come a long way, and there are many different state-of-the-art options available.</div>
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· In fact, many new hearing aids even have crowd-settings that help direct your hearing and limit background noise.</div>
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Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-48953203436275523182016-02-21T12:42:00.001-08:002016-02-21T12:42:19.033-08:00Magnetic pulses to the brain deliver long-lasting relief for tinnitus patientsHere's a very interesting article for all of us who suffer with tinnitus.<br /><br />
<br /><br />
<a href="https://www.sciencedaily.com/releases/2015/07/150716124118.htm#.Vsogw2P_7Gc.blogger">Magnetic pulses to the brain deliver long-lasting relief for tinnitus patients: Depression treatment tool holds tremendous promise for patients with debilitating condition</a>: In the largest US clinical trial of its kind researchers found that transcranial magnetic stimulation significantly improved tinnitus symptoms for more than half of study participants. <script type="text/javascript">var gaJsHost = (("https:" == document.location.protocol) ? "https://ssl." : "http://www.");document.write(unescape("%3Cscript src='" + gaJsHost + "google-analytics.com/ga.js' type='text/javascript'%3E%3C/script%3E"));</script><script type="text/javascript">try {var pageTracker = _gat._getTracker("UA-15228864-1");pageTracker._trackPageview();} catch(err) {}</script>Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-68323033990934564402016-02-02T16:28:00.002-08:002016-02-02T16:28:38.679-08:00Watch and Wait<div dir="ltr" style="text-align: left;" trbidi="on">
A very interesting article about "watching and waiting."<br />
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http://www.stuff.co.nz/life-style/well-good/76484297/why-i-let-a-brain-tumour-go-untouched-for-10-years</div>
Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-12654561256850206162016-01-26T11:49:00.002-08:002016-01-26T11:49:37.613-08:00Meeting: March 5th, 2016<div dir="ltr" style="text-align: left;" trbidi="on">
<span id="docs-internal-guid-93e3e9f5-7f7a-99b7-3401-88e78d0b9090"><div dir="ltr" style="line-height: 1.38; margin-bottom: 0pt; margin-top: 0pt;">
<span style="font-family: Arial; font-size: 14.6667px; font-weight: 700; vertical-align: baseline; white-space: pre-wrap;">Date/Time:</span><span style="font-family: Arial; font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;"> Saturday, March 5th, 2016</span></div>
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<span style="font-family: Arial; font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;">1:00-4:00</span></div>
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<span style="font-family: Arial; font-size: 14.6667px; font-weight: 700; vertical-align: baseline; white-space: pre-wrap;">Location:</span><span style="font-family: Arial; font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;"> San Diego Public Library - La Jolla - Riford Branch</span></div>
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<span style="font-family: Arial; font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;">7555 Draper Avenue at Pearl Street</span></div>
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<span style="font-family: Arial; font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;">La Jolla, CA 92037</span></div>
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<span style="font-family: Arial; font-size: 14.6667px; font-weight: 700; vertical-align: baseline; white-space: pre-wrap;">Directions:</span><span style="font-family: Arial; font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;"> Take the La Jolla Parkway Exit from the 15 freeway</span></div>
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<span style="font-family: Arial; font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;">Follow the road which turns into Torrey Pines Rd.</span></div>
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<span style="font-family: Arial; font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;">Go 1.5 miles and turn left onto Girard Ave.</span></div>
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<span style="font-family: Arial; font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;">Take 1st right onto Pearl Street for .2 miles</span></div>
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<span style="font-family: Arial; font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;">Turn right on Draper Avenue</span></div>
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<span style="font-family: Arial; font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;">Library is on the right.</span></div>
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<span style="font-family: Arial; font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;">There is a small parking lot and street parking around the area. </span></div>
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<span style="font-family: Arial; font-size: 14.6667px; font-weight: 700; vertical-align: baseline; white-space: pre-wrap;">Topic:</span></div>
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<span style="font-family: Arial; font-size: 18.6667px; font-weight: 700; vertical-align: baseline; white-space: pre-wrap;">San Diego Local Support Group “Caring and Sharing”</span></div>
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<span style="font-family: Arial; font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;">For this meeting, there will be no guest speaker. You will be speakers. Everybody who wishes to do so will have 5 or 10 minutes (depending on the number who attend) to share with the group. Suggested topics for discussion:</span></div>
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<span style="font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;">How you were diagnosed</span></div>
</li>
<li dir="ltr" style="font-family: Arial; font-size: 14.6667px; list-style-type: disc; vertical-align: baseline;"><div dir="ltr" style="line-height: 1.38; margin-bottom: 0pt; margin-top: 0pt;">
<span style="font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;">What treatment you chose or are considering and why?</span></div>
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<li dir="ltr" style="font-family: Arial; font-size: 14.6667px; list-style-type: disc; vertical-align: baseline;"><div dir="ltr" style="line-height: 1.38; margin-bottom: 0pt; margin-top: 0pt;">
<span style="font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;">For post-treatment patients, how you are coping?</span></div>
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<li dir="ltr" style="font-family: Arial; font-size: 14.6667px; list-style-type: disc; vertical-align: baseline;"><div dir="ltr" style="line-height: 1.38; margin-bottom: 0pt; margin-top: 0pt;">
<span style="font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;">Caregivers: How, what, when and why?</span></div>
</li>
<li dir="ltr" style="font-family: Arial; font-size: 14.6667px; list-style-type: disc; vertical-align: baseline;"><div dir="ltr" style="line-height: 1.38; margin-bottom: 0pt; margin-top: 0pt;">
<span style="font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;">Family members/loved ones: How your family life has been changed post AN.</span></div>
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<li dir="ltr" style="font-family: Arial; font-size: 14.6667px; list-style-type: disc; vertical-align: baseline;"><div dir="ltr" style="line-height: 1.38; margin-bottom: 0pt; margin-top: 0pt;">
<span style="font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;">The single best piece of advice you can offer to your fellow AN’ers, caregivers or family members.</span></div>
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</ul>
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<span style="font-family: Arial; font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;">This meeting will be very informal. We’re planning to have plenty of time to meet, greet, socialize and compare notes. As most of you know, our own membership has an incredible reservoir of real life experiences they are willing to share. </span></div>
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<span style="font-family: Arial; font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;">If you have a hearing aid or hearing device that you are pleased with, bring it along so the others can see it. If you have been prescribed a medication that is effective, bring it along and others can take note for discussions with their own doctors. If you’ve had successful physical or vestibular therapy bring information about it. </span></div>
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<span style="font-family: Arial; font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;">We will also have copies of the amazing list of resources Wanda Crook prepared for us last year. And, our list of free referrals will be on hand. Take this opportunity to update your library of AN literature. We have updated versions of most of the AN titles.</span></div>
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<span style="font-family: Arial; font-size: 14.6667px; vertical-align: baseline; white-space: pre-wrap;">Please join us at the beautiful La Jolla library for a great afternoon!</span></div>
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<span style="font-family: Arial; font-size: 14.6667px; font-weight: 700; vertical-align: baseline; white-space: pre-wrap;">Please RSVP to your local support group leader:</span></div>
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<span style="font-family: Arial; font-size: 14.6667px; font-weight: 700; vertical-align: baseline; white-space: pre-wrap;">Helen McHargue: email: </span><a href="mailto:foodsmarts@gmail.com" style="text-decoration: none;"><span style="color: #1155cc; font-family: Arial; font-size: 14.6667px; font-weight: 700; text-decoration: underline; vertical-align: baseline; white-space: pre-wrap;">foodsmarts@gmail.com</span></a><span style="font-family: Arial; font-size: 14.6667px; font-weight: 700; vertical-align: baseline; white-space: pre-wrap;"> Phone: 760-728-0309</span></div>
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<span style="font-family: Arial; font-size: 14.6667px; font-weight: 700; vertical-align: baseline; white-space: pre-wrap;">Cell Phone on day of meeting only: (619) 602-8175</span></div>
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Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-8356660411989943192015-12-24T06:38:00.001-08:002015-12-24T06:38:00.613-08:00Toxic secretions from intracranial tumor damage the inner ear | EurekAlert! Science News<a href="http://www.eurekalert.org/pub_releases/2015-12/meae-tsf122215.php#.VnwDMuIJyVI.blogger">Toxic secretions from intracranial tumor damage the inner ear | EurekAlert! Science News</a><br />
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<script type="text/javascript">var gaJsHost = (("https:" == document.location.protocol) ? "https://ssl." : "http://www.");document.write(unescape("%3Cscript src='" + gaJsHost + "google-analytics.com/ga.js' type='text/javascript'%3E%3C/script%3E"));</script><script type="text/javascript">try {var pageTracker = _gat._getTracker("UA-15228864-1");pageTracker._trackPageview();} catch(err) {}</script>Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-8103593796390053352015-12-21T15:52:00.000-08:002015-12-21T15:52:24.538-08:00January 16th, 2016 Meeting<div dir="ltr" style="text-align: left;" trbidi="on">
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Mark your calendars! First meeting of the new year will be a tour of the</div>
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<b>San Diego Gamma Knife Center. </b></div>
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Date: Jan. 16th<br />
Time: 1:00 - 4:00<br />
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Topics: Tour of the center and an overview of gamma knife technology presented by Dr. Kenneth Ott, Neurosurgeon. Following the tour we will have a caring and sharing gathering.<br />
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To RSVP: Helen McHargue, local support group leader/facilitator at 760-728-0309 or email: foodsmarts@gmail.com<br />
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San Diego Gamma Knife Center<br />
9834 Genesee Ave. #110<br />
La Jolla, CA 92037<br />
858-452-5020 or coordinator, Paul Loflin at 858-204-9155<br />
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Directions can be found at www.sdgkc.com/about/directions/<br />
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Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-81746096938189539422015-09-01T15:30:00.000-07:002015-09-01T15:30:09.343-07:00<div dir="ltr" style="text-align: left;" trbidi="on">
On the Acoustic Neuroma Friends Facebook page, we asked what items one should pack up to take to the hospital for surgery. Following are the suggestions:<br />
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<ul style="text-align: left;">
<li>A sleeping mask to block out light</li>
<li>One ear plug (or two if you still have hearing in both ears) - hospitals can be soooo noisy.</li>
<li>Pajamas (2 pairs) with a button front top and with wide sleeves to accommodate IV lines. </li>
<li>Slippers with non-skid soles and which will stay securely on your feet. Not scuffie type.</li>
<li>Recharging plugs for your electronic devices. Bring a long cord.</li>
<li>Hard candies to suck - many people complained about dry throat.</li>
<li>Hand lotion</li>
<li>Lip balm</li>
<li>Normal grooming items: deodorant, hairbrush, toothpaste, toothbrush. </li>
<li>Box of chocolates or candies for nurses. They will really appreciate it.</li>
<li>Glasses with one temple removed (so it doesn't interfere with bandages).</li>
<li>Sunglasses, preferably wrap-around for the ride home.</li>
<li>Make sure you have nice clean sheets to slip into when you get home. </li>
<li>Everybody should have one of these T-shirts:</li>
</ul>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj300VCZLaBpnM48CRxifdkJ8gXcxepHChM1kd6iHLnHlk5gqCYdX4uqQi9hsID3AoaplVAW7k9X9tkzBPy7JF9RMDpLNWwe9keWy_rATuMBYMQFdZUmoPjPSQ-0UUuaBA_SGfXM-Mw6mYL/s1600/Brain+Surgery+T-shirt.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj300VCZLaBpnM48CRxifdkJ8gXcxepHChM1kd6iHLnHlk5gqCYdX4uqQi9hsID3AoaplVAW7k9X9tkzBPy7JF9RMDpLNWwe9keWy_rATuMBYMQFdZUmoPjPSQ-0UUuaBA_SGfXM-Mw6mYL/s400/Brain+Surgery+T-shirt.jpg" width="300" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">R E Henkel Brem. Brain Surgery Survivor. Picture from Acoustic Neuroma Friends Facebook page.</td></tr>
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Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-34130549329954287452015-08-02T14:46:00.001-07:002015-08-02T14:46:23.743-07:00Medical Funnies<div dir="ltr" style="text-align: left;" trbidi="on">
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Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-60228711098670380832015-07-21T11:14:00.000-07:002015-07-21T11:14:23.121-07:00Support Group Meeting August 15th, 2015<div dir="ltr" style="text-align: left;" trbidi="on">
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<b><span style="font-size: large;"><span class="s1"></span>Mark your calendars!!</span></b></div>
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<span class="s1"><b>SAN DIEGO, CALIFORNIA</b></span></div>
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<span class="s1"><b>LOCAL SUPPORT GROUP MEETING INVITATION</b></span></div>
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<span class="s2"><b><i>Please plan to join us</i></b></span><span class="s1"> at the next meeting of your local Acoustic Neuroma Support Group.</span></div>
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<span class="s1">We welcome you to learn about the latest treatment options, to network with other acoustic neuroma patients and find encouragement and support.</span></div>
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<span class="s1"></span><br /></div>
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<span class="s1"><b>DATE/TIME:</b></span></div>
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<span class="s1"><b>Saturday, August 15th, 2015</b></span></div>
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<span class="s1"><b>1:00 - 4:00 p.m.</b></span></div>
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<span class="s1"><b></b></span><br /></div>
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<span class="s1"><b>PLEASE NOTE NEW MEETING LOCATION:</b></span></div>
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<span class="s1"><b>San Diego Public Library – Rancho Bernardo Branch</b></span></div>
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<span class="s1">17110 Bernardo Center Drive, San Diego, CA 92128</span></div>
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<span class="s1"><b>MAP/DIRECTIONS:</b> See back of invitation.</span></div>
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<span class="s1"><b>TOPICS:</b></span></div>
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<span class="s3">● </span><span class="s1"><b>Health Benefits of Tai Chi and Its Role in Rehabilitation</b></span></div>
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<span class="s1">Presented by<b> </b>Patricia Hoekman, 14 year Tai Chi Practitioner and Private Instructor</span></div>
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<span class="s3">Be prepared to participate – dress with mobility in mind. </span><span class="s1"><i>Tai chi is especially useful for improving balance and preventing falls—a major concern for acoustic neuroma patients because it targets all the physical components needed to stay upright—leg strength, flexibility, range of motion, and reflexes.</i></span></div>
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<span class="s3">● </span><span class="s1"><b>Meet and Greet, Caring and Sharing, Group Discussion Time</b></span></div>
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<span class="s1"><i>Please bring a snack to share. Bottled water will be available free of charge. </i></span></div>
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<span class="s1"><i></i></span><br /></div>
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<span class="s1"><b>TO RSVP, PLEASE CONTACT YOUR LOCAL SUPPORT GROUP LEADERS:</b></span></div>
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<span class="s1">Wanda Crook, Local Support Group Leader/Facilitator</span></div>
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<span class="s1">Phone 760-315-2599 or Email: movementlearningcenter@att.net</span></div>
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<span class="s1">Helen McHargue, Local Support Group Leader/Facilitator</span></div>
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<span class="s1">Phone 760-728-0309 or Email: foodsmarts@gmail.com</span></div>
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<span class="s1"><i>Wanda Crook, PT, and Helen McHargue, an acoustic neuroma post-treatment patient, will facilitate meeting.</i></span></div>
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<span class="s1"><b></b></span><br /></div>
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<span class="s1"><b>●NOTE Social Media Sites</b></span></div>
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<span class="s1"><b>Facebook - </b>Acoustic Neuroma Association San Diego Support Group (ANASDSG)</span></div>
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<span class="s1"><b>ANA San Diego Support Group Blog - </b>www.anasandiegosupport.blogspot.com</span></div>
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<span class="s4"><b><i>Who should attend?</i></b></span><span class="s1"> Family members, caregivers, friends and interested persons are encouraged to attend.</span></div>
<div class="p10">
<span class="s4"><b><i>Benefits of attending a local support group include</i></b></span><span class="s1"> communicating in a nurturing, non-judgmental environment with others who have shared a common acoustic neuroma experience; sharing information on dealing with specific problems, educational opportunities about the latest acoustic neuroma topics of interest; and providing emotional support to all patients, both pre- and post-treatment. This helps in reducing the isolation and loneliness that many acoustic neuroma patients feel.</span></div>
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<span class="s1"><b>Directions</b></span></div>
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<span class="s1"><b></b></span><br /></div>
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<span class="s1"><b><span style="font-size: large;">Note New Meeting Location: San Diego Public Library Rancho Bernardo Branch</span></b></span></div>
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<span class="s1">17110 Bernardo Center Drive</span></div>
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<span class="s1">Rancho Bernardo, CA 92128</span></div>
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<span class="s1"></span><br /></div>
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<span class="s1"><b>Directions:</b></span></div>
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<span class="s1">From I-15 north or south, take Rancho Bernardo Rd (exit 26) east bound.</span></div>
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<span class="s1">At first traffic light, Bernardo Center Drive, turn left. </span></div>
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<span class="s1">Turn left again on Park Terrace, driving uphill towards Hilton Garden Inn/Kaiser Permanente/24 hour fitness and the UBS building. The library is on the left in a complex with Souplantation and Stir Fry Mongolian Grill.</span></div>
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<span class="s1"><b>Note: This location is about 30 minutes from downtown San Diego</b></span></div>
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Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-63248232385293640152015-04-14T15:52:00.003-07:002015-04-14T15:52:53.292-07:00Lip reading<div dir="ltr" style="text-align: left;" trbidi="on">
Free lip reading lessons.<br />
<br />
<br />
https://www.lipreading.org/lipreading-missing-words</div>
Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-25318195835968877712015-03-13T17:41:00.003-07:002015-03-13T17:41:54.520-07:00Join us on Saturday May 16th at the La Jolla Library!<div dir="ltr" style="text-align: left;" trbidi="on">
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<span class="s1"><b><span style="font-size: large;">SAN DIEGO, CALIFORNIA</span></b></span></div>
<div class="p2" style="text-align: center;">
<span class="s1"><b>LOCAL SUPPORT GROUP MEETING INVITATION</b></span></div>
<div class="p3" style="text-align: center;">
<span class="s2"><b><i>Please plan to join us</i></b></span><span class="s1"> at the next meeting of your local Acoustic Neuroma Support Group.</span></div>
<div class="p3" style="text-align: center;">
<span class="s1">We welcome you to learn about the latest treatment options, to network with other acoustic neuroma patients and find encouragement and support.</span></div>
<div class="p4" style="text-align: center;">
<span class="s1"></span><br /></div>
<div class="p2" style="text-align: center;">
<span class="s1"><b>DATE/TIME:</b></span></div>
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<span class="s1"><b>Saturday, May 16, 2015</b></span></div>
<div class="p3" style="text-align: center;">
<span class="s1"><b>1:00 - 4:00 p.m.</b></span></div>
<div class="p5" style="text-align: center;">
<span class="s1"><b></b></span><br /></div>
<div class="p2" style="text-align: center;">
<span class="s1"><b>PLEASE NOTE NEW MEETING LOCATION:</b></span></div>
<div class="p3" style="text-align: center;">
<span class="s1"><b>San Diego Public Library - La Jolla-Riford Branch</b></span></div>
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<span class="s1">7555 Draper Avenue at Pearl Street</span></div>
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<span class="s1">La Jolla, CA 92037</span></div>
<div class="p3" style="text-align: center;">
<span class="s1"><b>MAP/DIRECTIONS:</b> See back of invitation.</span></div>
<div class="p5" style="text-align: center;">
<span class="s1"></span><br /></div>
<div class="p3" style="text-align: center;">
<span style="font-size: large;"><span class="s3"><b>TOPICS: </b></span><span class="s1"><b>● Making the Most of your Health Care Visits</b></span></span></div>
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<span class="s1"><b><span style="font-size: large;">● Strategies for Selecting a Medical Professional</span></b></span></div>
<div class="p3" style="text-align: center;">
<span class="s1"><b><span style="font-size: large;">● Questions to Ask Before, During and After Treatment</span></b></span></div>
<div class="p6" style="text-align: center;">
<span class="s1"><i>When initially diagnosed, few patients have a clear idea of where to turn in their selection of a qualified medical professional for treatment of their tumor or the questions to ask. Please join us for a group discussion to help prepare you for your acoustic neuroma journey and feel more confident in the treatment you choose, as well as specialists that can provide post-treatment therapies and rehabilitation. We will also discuss tips to help you make the most of your doctor appointments, so you can be actively engaged and communicate effectively with your health care team. </i></span></div>
<div class="p3" style="text-align: center;">
<span class="s1"><b>● Caring and Sharing</b></span></div>
<div class="p5" style="text-align: center;">
<span class="s1"><i></i></span><br /></div>
<div class="p2" style="text-align: center;">
<span class="s1"><b>TO RSVP, PLEASE CONTACT YOUR LOCAL SUPPORT GROUP LEADERS:</b></span></div>
<div class="p3" style="text-align: center;">
<span class="s1">Wanda Crook, Local Support Group Leader/Facilitator</span></div>
<div class="p3" style="text-align: center;">
<span class="s1">Phone 760-315-2599 or Email: movementlearningcenter@att.net</span></div>
<div class="p3" style="text-align: center;">
<span class="s1">Helen McHargue, Local Support Group Leader/Facilitator </span></div>
<div class="p3" style="text-align: center;">
<span class="s1">Phone 760-728-0309 or Email: foodsmarts@gmail.com</span></div>
<div class="p7" style="text-align: center;">
<span class="s1"><i>Wanda Crook, PT, and Helen McHargue, an acoustic neuroma post-treatment patient, will facilitate meeting.</i></span></div>
<div class="p5" style="text-align: center;">
<span class="s1"><b></b></span><br /></div>
<div class="p3" style="text-align: center;">
<span class="s1"><b>●NOTE Social Media Sites</b></span></div>
<div class="p3" style="text-align: center;">
<span class="s1"><b>Facebook - </b>Acoustic Neuroma Association San Diego Support Group (ANASDSG)</span></div>
<div class="p3" style="text-align: center;">
<span class="s1"><b>ANA San Diego Support Group Blog - </b>www.anasandiegosupport.blogspot.com</span></div>
<div class="p8" style="text-align: center;">
<span class="s3"><b><i>Who should attend?</i></b></span><span class="s1"> Family members, caregivers, friends and interested persons are encouraged to attend.</span></div>
<div class="p8" style="text-align: center;">
<span class="s3"><b><i>Benefits of attending a local support group include</i></b></span><span class="s1"> communicating in a nurturing, non-judgmental environment with others who have shared a common acoustic neuroma experience; sharing information on dealing with specific problems, educational opportunities about the latest acoustic neuroma topics of interest; and providing emotional support to all patients, both pre- and post-treatment. This helps in reducing the isolation and loneliness that many acoustic neuroma patients feel.</span></div>
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<span class="s1"><b>Directions</b></span></div>
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<span class="s1">Take the La Jolla Parkway Exit from the I5 freeway.</span></div>
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<span class="s1">Follow the road which turns into Torrey Pines Rd. </span></div>
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<span class="s1">Go 1.5 miles and turn left onto Girard Ave. </span></div>
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<span class="s1">Take 1st right onto Pearl Street for .2 miles. </span></div>
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<span class="s1">Turn right onto Draper Avenue. </span></div>
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<span class="s1">Library is on the right. </span></div>
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Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-83374451361473848342015-03-13T17:05:00.000-07:002015-03-13T17:05:21.438-07:00USC Surgery on Litlle Leaguer<div dir="ltr" style="text-align: left;" trbidi="on">
http://news.usc.edu/77196/thanks-to-usc-neurosurgeons-little-leaguer-is-back-in-the-game/</div>
Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-60681146973163612852015-02-08T12:38:00.000-08:002015-02-08T12:38:57.418-08:00Meeting Saturday, February 21st, 2015<div dir="ltr" style="text-align: left;" trbidi="on">
<b id="docs-internal-guid-9b10fd50-6ae8-d6c3-ee05-a621ffa9a98e"><span style="font-size: x-large;"><br /></span></b>
<div style="text-align: center;">
<b id="docs-internal-guid-9b10fd50-6ae8-d6c3-ee05-a621ffa9a98e"><b id="docs-internal-guid-9b10fd50-6ae8-d6c3-ee05-a621ffa9a98e"><span style="font-size: x-large;">ACOUSTIC NEUROMA ASSOCIATION</span></b></b></div>
<b id="docs-internal-guid-9b10fd50-6ae8-d6c3-ee05-a621ffa9a98e"><br /><br /></b><br />
<div dir="ltr" style="line-height: 1; margin-bottom: 0pt; margin-top: 0pt; text-align: center;">
<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 19px; font-style: normal; font-variant: normal; font-weight: bold; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">SAN DIEGO, CALIFORNIA</span></div>
<div dir="ltr" style="line-height: 1; margin-bottom: 0pt; margin-top: 0pt; text-align: center;">
<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 19px; font-style: normal; font-variant: normal; font-weight: bold; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">LOCAL SUPPORT GROUP MEETING INVITATION</span></div>
<div dir="ltr" style="line-height: 1; margin-bottom: 0pt; margin-top: 0pt; text-align: center;">
<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 21px; font-style: italic; font-variant: normal; font-weight: bold; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Please plan to join us</span><span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;"> at the next meeting of your local Acoustic Neuroma Support Group.</span></div>
<div dir="ltr" style="line-height: 1; margin-bottom: 0pt; margin-top: 0pt; text-align: center;">
<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">We welcome you to learn about the latest treatment options, to network with other acoustic neuroma patients and find encouragement and support.</span></div>
<b style="font-weight: normal;"><br /></b>
<div dir="ltr" style="line-height: 1; margin-bottom: 0pt; margin-top: 0pt; text-align: center;">
<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 19px; font-style: normal; font-variant: normal; font-weight: bold; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">DATE/TIME:</span></div>
<div dir="ltr" style="line-height: 1; margin-bottom: 0pt; margin-top: 0pt; text-align: center;">
<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: bold; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Saturday, February 21, 2015</span></div>
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<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: bold; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">1:00 - 3:00 p.m.</span></div>
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<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: bold; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">NOTE: </span><span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: small-caps; font-weight: bold; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">PLEASE PLAN TO ARRIVE PROMPTLY AT 12:45 PM AND MEET AT THE SECURITY DESK, THE CONFERENCE ROOM IS NOT ACCESSIBLE WITHOUT A SECURITY ESCORT.</span></div>
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<div dir="ltr" style="line-height: 1; margin-bottom: 0pt; margin-top: 0pt; text-align: center;">
<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 19px; font-style: normal; font-variant: normal; font-weight: bold; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">PLEASE NOTE NEW MEETING LOCATION:</span></div>
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<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: bold; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Scripps Proton Therapy Center Main Conference Room</span></div>
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<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">9730 Summers Ridge Road</span></div>
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<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">San Diego, CA 92121</span></div>
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<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: bold; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">PARKING/DIRECTIONS:</span><span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;"> See attachment.</span></div>
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<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 19px; font-style: normal; font-variant: normal; font-weight: bold; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">TOPICS:</span></div>
<div dir="ltr" style="line-height: 1; margin-bottom: 0pt; margin-top: 0pt; text-align: center;">
<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: bold; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">● Overview of Proton Therapy and Radiation Treatment Options for Acoustic Neuroma</span></div>
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<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Presented by Ryan Grover, MD, Radiation Oncologist</span></div>
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<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: bold; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">● Tour of Proton Therapy Center</span></div>
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<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 19px; font-style: normal; font-variant: normal; font-weight: bold; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">PLEASE RSVP WITH YOUR LOCAL SUPPORT GROUP LEADERS:</span></div>
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<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: bold; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">NOTE: An RSVP is appreciated and is extremely helpful in planning successful meetings! </span></div>
<div dir="ltr" style="line-height: 1; margin-bottom: 0pt; margin-top: 0pt; text-align: center;">
<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Wanda Crook, Local Support Group Leader/Facilitator</span></div>
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<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Phone 760-315-2599 or Email: movementlearningcenter@att.net</span></div>
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<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Helen McHargue, Local Support Group Leader/Facilitator </span></div>
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<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Phone 760-728-0309 or Email: foodsmarts@gmail.com</span></div>
<div dir="ltr" style="line-height: 1; margin-bottom: 0pt; margin-top: 0pt; text-align: center;">
<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 15px; font-style: italic; font-variant: normal; font-weight: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Wanda Crook, PT, and Helen McHargue, an acoustic neuroma post-treatment patient, will facilitate meeting.</span></div>
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<div dir="ltr" style="line-height: 1; margin-bottom: 0pt; margin-top: 0pt; text-align: center;">
<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: bold; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">●NOTE Social Media Sites</span></div>
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<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: bold; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Facebook - </span><span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Acoustic Neuroma Association San Diego Support Group (ANASDSG)</span></div>
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<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: bold; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">ANA San Diego Support Group Blog - </span><span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">www.anasandiegosupport.blogspot.com</span></div>
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<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 19px; font-style: italic; font-variant: normal; font-weight: bold; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Who should attend?</span><span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;"> Family members, caregivers, friends and interested persons are encouraged to attend.</span></div>
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<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 19px; font-style: italic; font-variant: normal; font-weight: bold; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;">Benefits of attending a local support group include</span><span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;"> communicating in a nurturing, non-judgmental environment with others who have shared a common acoustic neuroma experience; sharing information on dealing with specific problems, educational opportunities about the latest acoustic neuroma topics of interest; and providing emotional support to all patients, both pre- and post-treatment. This helps in reducing the isolation and loneliness that many acoustic neuroma patients feel.</span></div>
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<span style="background-color: transparent; color: black; font-family: 'Times New Roman'; font-size: 16px; font-style: normal; font-variant: normal; font-weight: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;"><img height="51px;" src="https://lh5.googleusercontent.com/HGVpNl9vkwUtYEe3SEG3QXEy4FWjyei88HdfeRypVTE_3ibrlmsKCVorDkIe2TMpVAFe83tQWfOoTAjAR-u3lOR07cKlaIvPD_wwLYYAIBt2XwmVVZ0S0PPagVbcb6eZrXjwGB2xso3M" style="-webkit-transform: rotate(0.00rad); border: none; transform: rotate(0.00rad);" width="576px;" /></span></div>
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Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-50242873219317542792014-10-16T12:01:00.000-07:002014-10-16T12:01:20.636-07:00Vestibular Rehabilitation Presentation<div dir="ltr" style="text-align: left;" trbidi="on">
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiu5RqHRvJ80lSC7WeysX5hQmtOwLRCNz22W4NGZxtDa59bKpbPOJdwxuMxw32N4LZZg03XjWJSDwHypG8YEYnu01snvHbHzEwO4dApLGFnC1804OWkl_bSPmZuzatog-rVPERKuj1gfE2v/s1600/052914-dizzy.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiu5RqHRvJ80lSC7WeysX5hQmtOwLRCNz22W4NGZxtDa59bKpbPOJdwxuMxw32N4LZZg03XjWJSDwHypG8YEYnu01snvHbHzEwO4dApLGFnC1804OWkl_bSPmZuzatog-rVPERKuj1gfE2v/s1600/052914-dizzy.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b><span style="font-size: x-large;">!!!!!!DIZZY!!!!!</span></b></td></tr>
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<span style="font-size: large;">Mark your calendar for our next meeting: Saturday, Nov. 15th, 2014 from 1:00 - 4:00 p.m. at Sharp Grossmont Rehabilitation Center, Conference Room.</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;"><b><span style="font-size: large;">Topic: Vestibular and Balance Rehabilitation</span></b><u></u><u></u></span></div>
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<span style="font-family: Georgia, Times New Roman, serif; font-size: large;">The presentation, including demos on the Balance Master, will be about 1 hour in length, followed by time for questions and for meeting, greeting and sharing information. </span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi44Vw0glzAGCcRJogv2Au8zyW0d8H1jgbeipApz5Uw44WZCryLiJ4UGHeb638rrHQyC2Nb3Z0zn2oMkOR70YR3pJ_6D49CPYLQqTlMBNbEiUNkSNLyA_VzN_B-M4MBOs9qeZmR8nAaXxd7/s1600/inner+ear.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi44Vw0glzAGCcRJogv2Au8zyW0d8H1jgbeipApz5Uw44WZCryLiJ4UGHeb638rrHQyC2Nb3Z0zn2oMkOR70YR3pJ_6D49CPYLQqTlMBNbEiUNkSNLyA_VzN_B-M4MBOs9qeZmR8nAaXxd7/s1600/inner+ear.jpg" height="192" width="320" /></a><span style="font-size: large;">Recently I spent some time "surfing" through the Vestibular Disorders Association (VEDA) website and found plenty of useful information. Much of it is simple validation of the symptoms/problems I personally experience with my AN and perhaps you do too. It's amazing how much our balance or lack of it affects our lives! This article is available on the web site in a PDF format if you wish to print it out. </span></div>
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<span style="font-size: medium;"><a href="https://vestibular.org/sites/default/files/page_files/Documents/Cognitive%20Aspects%20of%20Vestibular%20Disorders.pdf" target="_blank">Cognitive Aspect of Vestibular Disorders</a></span></div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgkna2jlk-9VXd51nNuqu-mMfDazLNmSgPTfsYbl94RsGaLDNnK8teY2RRzTX7UNE7VOSvFV6Ssy6dV485wMRu3Tch1pYGCJQJbaBIMZR8m0QUM2Y_Ezgb9YB4H7NDu5i9Hp7qZ8FoDjTet/s1600/gymnasticsbeam.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgkna2jlk-9VXd51nNuqu-mMfDazLNmSgPTfsYbl94RsGaLDNnK8teY2RRzTX7UNE7VOSvFV6Ssy6dV485wMRu3Tch1pYGCJQJbaBIMZR8m0QUM2Y_Ezgb9YB4H7NDu5i9Hp7qZ8FoDjTet/s1600/gymnasticsbeam.jpg" height="258" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">How I feel sometimes. How about you?</td></tr>
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Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-63141282750465727212014-07-29T10:59:00.001-07:002014-07-29T11:13:59.168-07:00NEXT MEETING: SUNDAY, AUGUST 10th<div dir="ltr" style="text-align: left;" trbidi="on">
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgiIIJrhnj421VcQ55bXqQvtBNs1F-CwQOhttAiK-gFOOsudR3zuGNQRsozmCbjplexotA5-8A4Bt8MkHmVMr5jSoDY9ozrq21rCMu71_vxJYY9V9W0b9BAtvwUtFHVS-JAMKvFTHJK4Ccy/s1600/IMG_9717_1024.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgiIIJrhnj421VcQ55bXqQvtBNs1F-CwQOhttAiK-gFOOsudR3zuGNQRsozmCbjplexotA5-8A4Bt8MkHmVMr5jSoDY9ozrq21rCMu71_vxJYY9V9W0b9BAtvwUtFHVS-JAMKvFTHJK4Ccy/s1600/IMG_9717_1024.jpg" height="300" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">The lovely meeting room at the La Jolla Public Library<br /></td></tr>
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<span style="font-size: large;">Next meeting: <u>Sunday, August 10th</u> at the La Jolla Public Library, 7555 Draper Avenue at Pearl Street, La Jolla, CA </span><br />
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<span style="font-size: large;">Time 1:00 - 4:00</span><br />
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<span style="font-size: large;">Our speaker will be Marilyn Weinhouse.</span><br />
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<i><span style="font-size: large;">"Marilyn Weinhouse is the owner of Hear Gear, a company which sells Assisted Listening Devices. Marilyn herself is afflicted with moderate hearing loss and wears two hearing aids. After retiring from her career as a teacher, she decided to start a business selling assisted listening devices and teaching others about the latest technology to improve hearing. </span></i></div>
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<i><span style="font-size: large;">Marilyn's presentation will cover the subjects of home hearing loops, personal amplifiers/listeners, TV listening systems, bluetooth products and MFI's- the "made for iphone" trend. </span></i></div>
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<span style="font-size: large;"><i>On her website,(click <a href="http://www.headgear.net/" style="color: #1155cc;" target="_blank">here</a> or go to <a href="http://www.heargear.net/" style="color: #1155cc;" target="_blank">www.heargear.net</a>) you can read more about Marilyn's interesting background and how she was inspired to help the hearing impaired understand the technology which can make our lives (and those of our loved ones) better. For a real treat and lots of great information, check out her interesting and entertaining blog by clicking <a href="http://www.heargear.wordpress.com/" style="color: #1155cc;" target="_blank">here</a> or at <a href="http://www.heargear.wordpress.com/" style="color: #1155cc;" target="_blank">www.heargear.wordpress.com</a>."</i><wbr></wbr> </span></div>
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<span style="font-size: large;">After Marilyn's presentation and a question and answer period, we will have plenty of time for an informal "meet and greet" where we can hear each other's stories and exchange information. La Jolla is beautiful all year long but particularly lovely during the hot summer months. Why not make a day out </span><span style="font-size: large;">of this meeting; come early for brunch or stay after the meeting for a late lunch or early dinner at one of the many great restaurants. There are so many good options in the town.</span></div>
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<span style="font-size: large;">If you plan on coming, please let us know by calling Helen McHargue (760) 728-0309 or email: foodsmarts@gmail.com OR Wanda Crook at (760) 315-2599 or email: movementlearningcenter@att.net</span></div>
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<span style="font-size: large;">SEE YOU THERE!!!!!</span></div>
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Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-60004505992440539542014-06-05T14:53:00.001-07:002014-06-05T14:53:40.037-07:00Meeting June 7th<div dir="ltr" style="text-align: left;" trbidi="on">
There will be a meeting of the San Diego Support Group on Saturday, June 7th at 1:00 - 4:00 p.m.<br />
Location: Tri City Medical Center - Meeting Room 5, 4002 Vista Way, Oceanside, CA 920056.<br />
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Primary Topic: The Yale University Acoustic Neuroma Study which is the first causation study to determine whether are are possible genetic risk factors that cause AN. The meeting will provide the opportunity for the group to work together to take the survey and sample collection. We need everyone to participate in the first study of its kind.<br />
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We will have a general support meeting after the Yale study. If you do not wish to participate in this portion of the meeting, you may stop by for the Yale study only.<br />
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Please come and participate. For statistical power and validity, the study requires 1000 AN patients. To date we have collected only 400 samples. Because there are so few us your sample submission REALLY COUNTS!!!!!</div>
Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-32288511858659931562014-02-23T12:38:00.000-08:002014-02-23T12:38:27.491-08:00Sleep Like the Dead<div dir="ltr" style="text-align: left;" trbidi="on">
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjVUf_zYNw00ecoj5uBBOi8CofxanVZlygi7CmE6qmX4CdvEk1caUcAVIOrEpVabteWw2m8y9IHM1ECLHwpbmO-h67dhXZ7O5r5o25HyHFzyp5TU1h2ilElqyMusViSmV6Z0BWlxIt9nAlk/s1600/Tinnitus.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjVUf_zYNw00ecoj5uBBOi8CofxanVZlygi7CmE6qmX4CdvEk1caUcAVIOrEpVabteWw2m8y9IHM1ECLHwpbmO-h67dhXZ7O5r5o25HyHFzyp5TU1h2ilElqyMusViSmV6Z0BWlxIt9nAlk/s1600/Tinnitus.jpg" height="282" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">overdriveonline.com</td></tr>
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<span style="font-size: large;">If you suffer from tinnitus like many acoustic neuroma sufferers and have a hard time sleeping, you might benefit from some of the tips offered on the "Sleep Like the Dead" website. The site creator was an insomniac for many years and sleep research became his passion. He rates by surveying hundreds of users, sound masking machines, ear plugs and even sleeping pills. It's worth a look. </span><br />
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<a href="http://www.sleeplikethedead.com/noise-sleep.html"><span style="font-size: large;">Sleep Like the Dead</span></a><br />
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Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-31596510665174400702014-01-21T16:53:00.000-08:002014-01-21T16:53:57.092-08:00Leah Keith Story<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="font-size: x-small; font-weight: normal;">Leah Keith produced the Mark Ruffalo interview which can be viewed on the ANA web site. </span></h1>
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<span style="font-size: 12.800000190734863px; font-weight: normal;">Here's an article she wrote about her AN experience. It appeared in the New York Times, Modern Love section, April 11th 2013. </span></h1>
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Despite the Losses, So Much Gained</h1>
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Brian Rea</div>
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By <span class="il" style="background-color: #ffffcc;">LEAH</span> <span class="il" style="background-color: #ffffcc;">KEITH</span></h6>
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Dude was a doctor who wanted to leave medicine. We met almost 20 years ago, when he applied to a writing fellowship program at the movie studio where I was an executive.<br />
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When I called him with the good news, he jumped up and down and screamed into the phone. Then he told me he didn’t hear anything after the word “accepted.” “To me,” he said, “you just sound like an angel.”</div>
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No one had ever called me an angel before.</div>
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Months later, Dude moved to Los Angeles. In the beginning of our professional relationship, I would give him notes on his screenplays.</div>
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Our personal relationship happened later. I was a 26-year-old black woman from Georgia, and he was a New York Italian 13 years older. I don’t remember when or why he became Dude, but after the naming, he anointed me Lilly, short for Li’l Dude. From then on, we were those people to each other.</div>
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Dude loved biking, hiking and anything I cooked. I loved Pilates, arctic martinis and anything he wrote. We sang. We danced. We watched movies and debated their merits. We read to each other before falling asleep.</div>
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Our relationship was not an obvious one, but neither of us liked the obvious. Dude smelled like freshly folded laundry, baked chicken, red wine and loaves of bread as they rose in the oven. He said my smile lit up a room.</div>
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Waiting for success was not easy for Dude. Achieving a No. 1 ranking in his Ivy League graduating class had been effortless compared with selling a screenplay. I tried to explain that in Hollywood, success equaled talent plus luck, but he didn’t understand, and I couldn’t understand why he didn’t understand. We argued. It felt like the beginning of the end of us.</div>
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Dude broke up with me before leaving for the airport to bury his father. The phone call was as sudden to me as his ailing father’s death had been to him. I told myself I had pushed him too hard. I told myself I wasn’t “this” or “that” enough. I told myself he just didn’t love me as much as I loved him.</div>
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Eventually, time brought on the occasional check-in phone call. I learned that to make ends meet, Dude took an administrative-assistant job at a Hollywood studio. “It’s better than staring into a microscope for hours,” he said.</div>
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Hollywood, for him, had lost its luster. He was no longer writing, but he also had no interest in returning to medicine. I knew that I, as his marginally successful producer former girlfriend, had become a reminder of the only defeat he had ever known. I feigned excitement about his new job.</div>
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I didn’t want to know much about his dating life, and he didn’t seem curious about mine. Calls became less frequent, and dinners happened only at birthdays. But when we were together, we laughed, ate, drank and sang as we always did. Then we returned to our separate lives.</div>
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Everything changed two years ago, when my ear began to ring. I was awaiting a “green light” on an animated film. The ringing was loud and constant. I called Dude.</div>
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After a hearing test, CT scan and M.R.I., my life turned into someone else’s movie. Dude said he would come with me to get the results. I didn’t stop him.</div>
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I was found to have a 2.5-centimeter acoustic neuroma, a benign tumor of the nerve connecting the ear to the brain; it occurs in about 2 of every 100,000 people. Unbeknown to me, I had already experienced 50 percent hearing loss in my right ear, and my facial nerve had been engulfed by the tumor. Removing it would be difficult. Half of my face could become paralyzed.</div>
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This was highly specialized surgery, and my doctor said I was blessed because the best surgeon was only 15 minutes away; he was the Michael Jordan of neurotology.I could feel Dude trying to contain his excitement about meeting His Airness of the ear and brain. I gave him permission to geek out. I figured someone should be happy about something.After the appointment with M. J., Dude and I walked silently. Once we arrived at my car, I broke down. Dude held me. </div>
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I was scheduled for a translabyrinthine craniotomy, the most conservative approach. I would be deaf in one ear, but if M. J. was as good as everyone said, I would still have the smile Dude had once loved.</div>
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The movie I was producing was going into storyboards. During that time, Dude and I talked on the phone every night until I fell asleep. In my doubting moments, when I asked if we were doing the right thing, Dude would say: “We have the best surgeon. We chose the right surgery. We will be fine.”</div>
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I liked that he used the word “We.”</div>
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In my darkest moments, when I asked if he would still love me if I lost half my face, he said: “Hell, no. Deformed people make me nervous. So if Lilly’s face gets busted, Dude out.”</div>
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We laughed, and then the man whose constant reply to my “I love you, Dude” had always been “Ugh” said: “I will always love you. No matter what happens.”</div>
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“Here is your medical directive,” said the hush-toned woman on the other side of the table.</div>
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Dude had joined me at 8:30 a.m. at the hospital, where I signed enough paperwork to buy a house. My mother and sister had flown in and waited outside the door while Dude and I handled the grimmest of business. Dude wouldn’t allow me to read the medical directive. He turned it over to the signing page and placed his hand over the words.</div>
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“Sign!” he said.</div>
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I did as told, but not before I turned to him and said: “Don’t pull the plug too soon. I’d like to become a Lifetime movie.”</div>
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He smiled and nodded. That was all we said about the fact that I could die that day.</div>
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My mother called Dude her “son,” and my sister referred to him as her “brother from another mother.” We had become an unconventional family.</div>
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“Who ordered a pizza pie?” were the first words I heard from Dude as he entered my hospital room the next day carrying my dinner over his head. I smiled broadly. He smiled back even broader. I knew that he smiled because I could smile.</div>
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The next days were filled with wobbly steps, tightly held hands and many firsts. After I got home, Dude and I continued our pre-op ritual with almost nightly phone calls.</div>
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Thirteen months after my diagnosis, on an ordinary Tuesday in November, we talked for hours. He spoke of his love of James Brown and his longing for forbidden foods like bacon and foie gras. He made me ask Siri on my new iPhone to do pornographic things to him. We laughed until I fell asleep.</div>
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The next day, Dude’s worried assistant (he was running the department now) called to say he hadn’t shown up for work. When I arrived at his apartment, the paramedics were leaving.</div>
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Dude had died.</div>
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He had not been ill. He had not had an accident. His heart was just done with its work.</div>
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I held on to a railing, and the paramedic sat with me until my world stopped spinning. I knew once I entered the apartment, life would be forever divided. “Before Dude” and “After Dude” would preface everything.</div>
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The police arrived. There were interviews, phone calls and a three-hour wait for the coroner. During it all, I stood behind the kitchen counter staring at the back of Dude’s always pristinely blow-dried head. Soon I would have to call his friends and family and divide their lives, too.</div>
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Now Dude lives in photographs, one voice mail, one piece of video, one pair of hiking boots, his favorite jacket, a few worn sweatshirts, his watch, his cat, his screenplays, his copper pots and pans, his surgical instruments that he used to fry chicken, and the recesses of my memory.</div>
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I will never again hear him explain that Miller Genuine Draft 64 only has 64 calories as justification for why it’s O.K. to drink a six-pack in one sitting. I will never hear him explain every stage of the <a href="http://topics.nytimes.com/top/reference/timestopics/subjects/t/tour_de_france_bicycle_race/index.html?inline=nyt-classifier" style="color: #1155cc;" target="_blank" title="More articles about the Tour de France (Bicycle Race).">Tour de France</a> in a way that makes me wish I could ride a bike. I will never know that he is hanging on to my every word when I tell him some ridiculous story about my day, and I will never again hear him laugh at that story.</div>
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When my rare tumor was found, I thought it was the worst thing that could ever happen to me. Now I know I was the luckiest woman in the world. For 13 lucky months, I got to stare into the abyss and feel safe jumping into it because a man who loved me promised to hold my hand all the way down.</div>
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If I had known that I would be the one who had to let go, would I have done anything differently? No.</div>
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<span class="il" style="background-color: #ffffcc;">Leah</span> <span class="il" style="background-color: #ffffcc;">Keith</span> is an independent live-action and animation film producer in Los Angeles.</div>
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Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-50043724706162730442013-09-23T14:19:00.000-07:002013-09-23T16:39:55.673-07:00Diagnosis in a Dream<div dir="ltr" style="text-align: left;" trbidi="on">
Mark Ruffalo is among those of us afflicted with an acoustic neuroma.<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjssq5Av89h1iegUp9m58L7Qz7Jzcj_5iQ5Y_SSTcq_oHnTyQm3XQt9Vxkdt6pzuwRNseM6_e5GcQ3rDf8O6toYFSF7oIIA9VWXu-e8TtQuCF7Z1OpAv2Zq75MDfovq3cag0VUXHwg73cTT/s1600/markruffalo.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjssq5Av89h1iegUp9m58L7Qz7Jzcj_5iQ5Y_SSTcq_oHnTyQm3XQt9Vxkdt6pzuwRNseM6_e5GcQ3rDf8O6toYFSF7oIIA9VWXu-e8TtQuCF7Z1OpAv2Zq75MDfovq3cag0VUXHwg73cTT/s1600/markruffalo.jpeg" /></a></div>
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Here's an interview with him about his unusual experience. He dreamed he had a brain tumor and it turned out he did! Read about it here:<br />
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<a href="http://www.anausa.org/">Interview with Mark</a></div>
Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-70273211482464290482013-09-23T14:14:00.001-07:002013-09-23T14:14:30.250-07:00Bionic Ear<div dir="ltr" style="text-align: left;" trbidi="on">
<section class="post-meta fix post-nothumb " style="background-color: white; font-family: Arial, 'Helvetica Neue', Helvetica, sans-serif; font-size: 14px; line-height: 21px; margin-bottom: 1.71em;"><section class="bd post-header fix"><section class="bd post-title-section fix" style="padding-bottom: 6px;"><hgroup class="post-title fix"><h1 class="entry-title" style="background-color: transparent; border: 0px; font-size: 20px; font-weight: normal; line-height: 1.3em; margin: 0px; outline: 0px; padding: 0px; text-rendering: optimizelegibility; vertical-align: baseline;">
Scientists develop a ‘bionic ear’ with super-human power</h1>
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<span style="background-color: transparent; border: 0px; color: rgba(0, 0, 0, 0.701961); margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;">By <span class="author vcard sc" style="background-color: transparent; border: 0px; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;"><span class="fn" style="background-color: transparent; border: 0px; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;"><a href="http://hearinghealthmatters.org/hearingnewswatch/author/hhm1002/" rel="author" style="background-color: transparent; border: 0px; color: rgba(0, 0, 0, 0.701961); margin: 0px; outline: 0px; padding: 0px; text-decoration: none; vertical-align: baseline;" title="Posts by David Kirkwood">David Kirkwood</a></span></span> On <time class="date time published updated sc" datetime="2013-05-08T08:45:26+00:00">May 8, 2013</time> · <span class="post-comments sc" style="background-color: transparent; border: 0px; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;"><a href="http://hearinghealthmatters.org/hearingnewswatch/2013/scientists-develop-a-bionic-ear-with-super-human-power/#wp-comments" style="background-color: transparent; border: 0px; color: rgba(0, 0, 0, 0.701961); margin: 0px; outline: 0px; padding: 0px; text-decoration: none; vertical-align: baseline;">Add Comment</a></span></span></div>
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<a class="cleanprint-exclude" href="http://hearinghealthmatters.org/hearingnewswatch/2013/scientists-develop-a-bionic-ear-with-super-human-power/" style="background-color: transparent; border: 0px; color: #4178b1; margin: 0px; outline: 0px; padding: 0px; text-decoration: none; vertical-align: baseline;" title="Print page"><img src="http://cache-02.cleanprint.net/media/pfviewer/images/CleanPrintBtn_gray_small.png" style="background-color: transparent; border: 0px; height: auto; margin: 0px; max-width: 100%; outline: 0px; padding: 0px; vertical-align: middle;" /></a><a class="cleanprint-exclude" href="http://hearinghealthmatters.org/hearingnewswatch/2013/scientists-develop-a-bionic-ear-with-super-human-power/" style="background-color: transparent; border: 0px; color: #4178b1; margin: 0px; outline: 0px; padding: 0px; text-decoration: none; vertical-align: baseline;" title="PDF page"><img src="http://cache-02.cleanprint.net/media/pfviewer/images/PdfBtn_gray_small.png" style="background-color: transparent; border: 0px; height: auto; margin: 0px; max-width: 100%; outline: 0px; padding: 0px; vertical-align: middle;" /></a><a class="cleanprint-exclude" href="http://hearinghealthmatters.org/hearingnewswatch/2013/scientists-develop-a-bionic-ear-with-super-human-power/" style="background-color: transparent; border: 0px; color: #4178b1; margin: 0px; outline: 0px; padding: 0px; text-decoration: none; vertical-align: baseline;" title="Email page"><img src="http://cache-02.cleanprint.net/media/pfviewer/images/EmailBtn_gray_small.png" style="background-color: transparent; border: 0px; height: auto; margin: 0px; max-width: 100%; outline: 0px; padding: 0px; vertical-align: middle;" /></a></div>
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<a href="http://hearinghealthmatters.org/hearingnewswatch/files/2013/05/56048_web.jpg" style="background-color: transparent; border: 0px; color: #4178b1; margin: 0px; outline: 0px; padding: 0px; text-decoration: none; vertical-align: baseline;"><img alt="Caption: Scientists This "bionic ear" is capable of receiving radio signals. Photo by Frank Wojciechowski" class="size-full wp-image-3454" height="271" src="http://hearinghealthmatters.org/hearingnewswatch/files/2013/05/56048_web.jpg" style="background-color: rgba(255, 255, 255, 0.6); border: 0px none; box-sizing: border-box; display: inline-block; height: auto; margin: 0px; max-width: 100%; outline: 0px; padding: 2px; vertical-align: middle;" width="400" /></a><div class="wp-caption-text" style="background-color: transparent; border: 0px; font-size: 11px; line-height: 16px; orphans: 4; outline: 0px; padding: 6px 0px 2px; vertical-align: baseline;">
This “bionic ear” invented in a lab at Princeton University is capable of receiving radio signals. Frank Wojciechowski photo </div>
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<i style="background-color: transparent; border: 0px; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;">PRINCETON, NJ—</i>Blending electronics and biology, scientists at Princeton University have used readily available 3D printing tools to create a functioning “bionic ear” that can detect radio frequencies far beyond the range of normal human capability.</div>
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In a May 1 <a href="http://www.eurekalert.org/pub_releases/2013-05/pues-pe050113.php" style="background-color: transparent; border: 0px; color: #4178b1; margin: 0px; outline: 0px; padding: 0px; text-decoration: none; vertical-align: baseline;" title="news release">news release</a>, John Sullivan of the Office of Engineering Communication at Princeton reported that the primary purpose of the researchers was to develop an effective means of merging electronics with biological tissue. The scientists used 3D printing of cells and nanoparticles followed by cell culture to combine a small coil antenna with cartilage, creating what they termed a bionic ear.</div>
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The lead researcher is Michael McAlpine, an assistant professor of mechanical and aerospace engineering at Princeton. He told Sullivan, “There are mechanical and thermal challenges with interfacing electronic materials with biological materials. However, our work suggests a new approach–to build and grow the biology up with the electronics synergistically and in a 3D interwoven format.”</div>
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The Princeton team has been doing research in cybernetics for several years. This promising field seeks to design bionic organs and devices to enhance human abilities. The bionic ear project was the first effort by McAlpine and colleagues to create a fully functional organ: one that replicates a human ability and then uses embedded electronics to extend it.</div>
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Writing in the journal <a href="http://pubs.acs.org/doi/abs/10.1021/nl4007744?prevSearch=%5BContrib%3A%2Bmcalpine%5D&searchHistoryKey" style="background-color: transparent; border: 0px; color: #4178b1; margin: 0px; outline: 0px; padding: 0px; text-decoration: none; vertical-align: baseline;" title="Nano Letters"><i style="background-color: transparent; border: 0px; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;">Nano Letters</i></a>, the scientists said that cybernetics, “has the potential to generate customized replacement parts for the human body, or even create organs containing capabilities beyond what human biology ordinarily provides.”</div>
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In order to replicate complex three-dimensional biological structures, the researchers turned to 3D printing. A 3D printer uses computer-assisted design to conceive of objects as arrays of thin slices. It then deposits layers of materials to build up a finished product.</div>
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One example of this approach is CAMISHA (computer-aided-manufacturing-for-individual-shells-for-hearing-aids), which was invented by Soren Westermann at Widex, and is now used to build 95% of custom hearing aids.</div>
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According to Princeton, the bionic ear project marked the first time that researchers have demonstrated that 3D printing is a convenient strategy to interweave tissue with electronics. The researchers used an ordinary 3D printer to combine a matrix of hydrogel and calf cells with silver nanoparticles that form an antenna. The calf cells later develop into cartilage.</div>
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The initial device developed by McAlpine and colleagues detects radio waves, but the team plans to incorporate other materials that would enable it to hear acoustic sounds. While it will take much more work to develop a bionic ear that could restore or enhance human hearing, McAlpine said that in principle it should be possible to do so.</div>
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The team that developed the bionic ear consists of six Princeton faculty members, two graduate students from Princeton and Johns Hopkins University, and Ziwen Jiang, a high school student at the Peddie School in Hightstown, NJ. McAlpine said of the precocious teenager, “We would not have been able to complete this project without him, particularly in his skill at mastering CAD designs of the bionic ears.”</div>
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Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0tag:blogger.com,1999:blog-9157502649319055223.post-53153501224784188462013-08-17T13:39:00.001-07:002013-08-17T13:39:30.998-07:00Founding of the Acoustic Neuroma Association<div dir="ltr" style="text-align: left;" trbidi="on">
If you haven't seen or heard Ginnie Fickel Ehr talk about her experience and how she founded the Acoustic Neuroma Association, you should watch this 8 minute video.<br />
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Ginnie was at the recent symposium in Los Angeles and celebrated her 84th birthday with the group.<br />
What a woman!<br />
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<a href="http://www.youtube.com/watch?v=m0H1Hb8Dajk">Founder of the Acoustic Neuroma Association</a></div>
Helen Killeen Bauch McHarguehttp://www.blogger.com/profile/07042488205276127209noreply@blogger.com0